A Patient's Perspective on Spastic Tetraparesis Diagnosis

There are books that discuss all types of cerebral palsy and provide guidelines for families of those who have it, but they do not describe specifically the spastic tetraparesis diagnosis. They address the plegia type of diagnosis and not the paresis one, yet these are two different conditions. They are mostly written from a doctor’s or physiotherapist’s point of view, and not by the patients themselves.

This book is different, as it is written by someone with personal experience of receiving this diagnosis.

It gives an overview of how the diagnosis of spastic tetraparesis affects the body at each level (face, hands, abdomen, lower limbs), as well as the challenges the diagnosed person faces in daily life, and ways to overcome these challenges (tools to make dressing easier, different walking aids along with their drawbacks and benefits, ways to be independent in carrying out activities, among others). It also explores the relationship between disability and sexuality.